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Warriors Without Limits 

Warriors Without Limits – Our current campaign to support families living with sickle cell.

Image by Accuray

Education Hub

Plain-language information about sickle cell disease, trait, gene therapy, and living well with SCD.

Knowledge is Power

Medical information about sickle cell can be overwhelming and confusing. We break down complex topics into accessible, family-friendly resources that empower you to make informed decisions and advocate for the care you deserve.

Understanding Sickle Cell Disease

Learn the basics about sickle cell disease, how it affects the body, and what families need to know.

Sickle Cell Trait

Important information about carrying the sickle cell trait, genetic counseling, and family planning.

Living with Sickle Cell

Practical guidance for daily life, managing school and work, staying healthy, and thriving with SCD.

Gene Therapy 101

Clear explanations of gene therapy options, eligibility, what to expect, and long-term outcomes.

Life After Cure

Support and guidance for navigating life after gene therapy or curative treatments.

Pain Management Basics

Evidence-based approaches to pain care, medication management, and alternative therapies.

Downloadable Resources

Free guides, worksheets, and reference materials you can download and use at home, in appointments, or at school.

CMS Sickle Cell Disease Provider Toolkit (2024)

School Toolkit for Sickle Cell Disease 

A Parents Guide To Managing SCD

Games for Patients SCD

Transition to Adulthood Parents Caregivers

Understanding Sickle Cell Disease

Educational Videos

Watch and learn at your own pace with our video library featuring medical experts, patient stories, and practical guidance.

Have Questions?

We are here to help you understand your options, navigate treatment decisions, and find the information you need.

We can help with:

✓ Understanding diagnosis and test results

✓ Gene therapy eligibility and decision-making

✓ Treatment options and what to expect

✓ Connecting with others on similar journeys

✓ Finding specialists and resources

Stay Updated on Sickle Cell News

Get the latest information on gene therapy advances, treatment options, and sickle cell research.

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