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You Care for the Warrior.
We Care for You.
Comprehensive support for caregivers who give everything to support those living with sickle cell disease.
Why Caregiver Support Matters
Caregivers are the backbone of sickle cell care, yet they often go without the support they desperately need. We see you, we value you, and we're here to walk beside you.
Caregiver Burnout is Real
Years of emergency room visits, sleepless nights, and constant vigilance take a profound physical and emotional toll.
Financial Strain
Medical bills, lost work hours, transportation costs, and specialized care needs create overwhelming financial pressure.
Emotional Weight
Watching someone you love in pain, managing fear and uncertainty, and feeling isolated in the journey affects mental health.
Stigma and Misunderstanding
Navigating healthcare systems that don't always understand sickle cell, fighting for appropriate care, and dealing with stigma around pain management.
What We Offer
Comprehensive wraparound services addressing every aspect of caregiver wellbeing and family stability.
Case Management & Crisis Support
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Dedicated case manager for ongoing support and resource navigation
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Hospital advocacy and coordination with medical teams
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Benefits navigation and insurance support
Mental Health & Counseling
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Connections to culturally competent therapists and counselors
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Peer support groups facilitated by licensed professionals
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Trauma-informed care for caregivers experiencing burnout
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Family counseling to address relationship strain
Caregiver Retreats & Wellness
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Annual healing retreats offering rest, community, and renewal
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Wellness workshops covering stress management and self-care
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Social activities and connection events
Regular Check-ins
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Regular virtual check-ins to assess caregiver wellbeing
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Early intervention for signs of burnout or depression
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Resource referrals based on emerging needs
Housing & Utilities Assistance
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Emergency housing assistance and rental support
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Utility bill assistance to prevent shutoffs
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Connection to affordable housing programs
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Home modification support for accessibility needs
Food & Nutrition Support
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Food pantry access and grocery assistance
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Nutrition education tailored to sickle cell needs
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Meal delivery coordination during crises
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Connection to SNAP and WIC programs
Transportation Services
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Gas cards and assistance for medical appointments
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Coordination of rides to treatment and support services
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Public transportation passes
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Vehicle repair assistance for families in need
Employment Support
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Connection to disability benefits and other programs
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Job placement services and employment counseling
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Financial literacy workshops and budgeting support
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Emergency financial assistance for critical needs
