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Why Caregiver Support Matters
Caregivers are the backbone of sickle cell care, yet they often go without the support they desperately need. We see you, we value you, and we're here to walk beside you.
Caregiver Burnout is Real
Years of emergency room visits, sleepless nights, and constant vigilance take a profound physical and emotional toll.
Financial Strain
Medical bills, lost work hours, transportation costs, and specialized care needs create overwhelming financial pressure.
Emotional Weight
Watching someone you love in pain, managing fear and uncertainty, and feeling isolated in the journey affects mental health.
Stigma and Misunderstanding
Navigating healthcare systems that don't always understand sickle cell, fighting for appropriate care, and dealing with stigma around pain management.
Stability is Healthcare
Comprehensive support for caregivers who give everything to support those living with sickle cell disease.
What We Offer
From health fairs to support groups to school education, we bring sickle cell awareness and resources to communities across Missouri.
Emergency Financial Assistance
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Direct financial help for critical needs (rent, utilities, medical bills)
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Fast-tracked assistance during crisis situations
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No judgment, confidential support
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Flexible funding based on individual circumstances
Utility Assistance
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Help paying electric, gas, and water bills to prevent shutoffs
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Energy assistance program connections
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Crisis intervention for immediate shutoff threats
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Budgeting support to manage ongoing utility costs
Food & Nutrition Support
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Food pantry access with culturally appropriate options
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Grocery assistance and gift cards
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Connection to SNAP (food stamps) and WIC programs
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Meal delivery coordination during health crises
Benefits Navigation
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Help applying for disability benefits (SSI/SSDI)
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Medicaid and insurance enrollment assistance
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Appeal support when benefits are denied
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Connection to legal aid for benefits issues
